Bytemi
New member
I am sorry to worry everyone. My husband (who returned yesterday safely) has been gone and I have had a lot on my plate.
I have Uveitis which is swelling and irritation of the Uvea, the middle layer of the eye. The uvea provides most of the blood supply to the retina. This is fairly common in people with MS. When it flared up my husband was already gone and it hit me so fast that there was no correcting or avoiding it. I have spent most of August barley able to see. I received two steroid injections in my eyes to try and reduce the swelling (yes it hurts as much as it sounds) but unfortunetly, I had an allergic reaction and my eyes swelled almost completely shut. I went to the doctor again on Friday and I was told that the jelly that protects the retina has seperated and my middle eye is now bleeding, causing big dark floaters further decreasing my vision. Believe it or not, I am seeing so much better today, than I have seen in weeks. The injections appear to be working and hopefully I will be get back the majority of my vision.
Even with the decrease (a very blurry 20/45, worse with close up work) I was told that I could keep my license and continue driving. So I have managed to keep Antonia on track with her therapy. I told her that if my driving scared her, she just had to tell me and I would pull over and we would find another way around. She agreed and did a great job helping me. She has moved on to the next stage of therapy and is doing office therapy once a week and home therapy four times a week. She has also started a Dynamic Reader program that she completes each night and Doctor Davis e-mails her and tells her how she is doing.
On top of the eye issues and therapy, my oldest daughter has developed neurological problems and we are in the process of trying to figure what is wrong. So far we have confirmation that she has Raynaud's disease and we go for an MRI on Saturday to see if there is more. I am hoping and praying that she does not have MS, would not wish it on anyone! To further complicate things again, my mother-in-law had a stroke and has lost the majority of her vision and she has a brain anerism.
I have felt very helpless, useless and all alone for the last month and honestly, my ability to see clearly and work on a computer has been limited to work, to much strain to do it any other time. I have missed all of my fellow spyder lovers and I can't wait for a little more improvement so I can ryde the spyder again. Antonia and I have both missed it greatly and we can't wait. Now that my husband is home, hopefully we can get back to somewhat of normal life. Well normal in the fact that now I can have some help with all the medical issues that have developed.
I have Uveitis which is swelling and irritation of the Uvea, the middle layer of the eye. The uvea provides most of the blood supply to the retina. This is fairly common in people with MS. When it flared up my husband was already gone and it hit me so fast that there was no correcting or avoiding it. I have spent most of August barley able to see. I received two steroid injections in my eyes to try and reduce the swelling (yes it hurts as much as it sounds) but unfortunetly, I had an allergic reaction and my eyes swelled almost completely shut. I went to the doctor again on Friday and I was told that the jelly that protects the retina has seperated and my middle eye is now bleeding, causing big dark floaters further decreasing my vision. Believe it or not, I am seeing so much better today, than I have seen in weeks. The injections appear to be working and hopefully I will be get back the majority of my vision.
Even with the decrease (a very blurry 20/45, worse with close up work) I was told that I could keep my license and continue driving. So I have managed to keep Antonia on track with her therapy. I told her that if my driving scared her, she just had to tell me and I would pull over and we would find another way around. She agreed and did a great job helping me. She has moved on to the next stage of therapy and is doing office therapy once a week and home therapy four times a week. She has also started a Dynamic Reader program that she completes each night and Doctor Davis e-mails her and tells her how she is doing.
On top of the eye issues and therapy, my oldest daughter has developed neurological problems and we are in the process of trying to figure what is wrong. So far we have confirmation that she has Raynaud's disease and we go for an MRI on Saturday to see if there is more. I am hoping and praying that she does not have MS, would not wish it on anyone! To further complicate things again, my mother-in-law had a stroke and has lost the majority of her vision and she has a brain anerism.
I have felt very helpless, useless and all alone for the last month and honestly, my ability to see clearly and work on a computer has been limited to work, to much strain to do it any other time. I have missed all of my fellow spyder lovers and I can't wait for a little more improvement so I can ryde the spyder again. Antonia and I have both missed it greatly and we can't wait. Now that my husband is home, hopefully we can get back to somewhat of normal life. Well normal in the fact that now I can have some help with all the medical issues that have developed.
ray:
But seriously, I don't think I can take much more.
