LongIsland
Member
Mike, sorry to hear about your illness. 12 years of reading your posts makes me think of you as a friend. Our prayers are with you for a strong recovery.
So folks I have recently been diagnosed with Cancer :banghead:.... It's stage #4, so prognosis isn't good .... My attitude about this " We all die sometime " .... this may be mine :dontknow: ....I've started my Chemo and so far things have gotten a little better..... Pain is not too bad but it's there 24/7 ..... Please don't think of this as a " Oh Boo Hoo whoa is me thing thread " .... just letting you know I'm slowing down & why ..... I feel my time on Spyderlovers has had it's ups and down's ..... but mostly UPS. .... I think LaMonsters changes has been for the better ( at least in my case :roflblack..... I've tried to assist in areas I have knowledge ( Yes especially TIRES :yikes
& will continue to do so...... So accept this thread for what it is .... just keeping folks in the Loop .....Mike :thumbup:
Wanted to, but forgot to mention, very common to get a second opinion.
Second opinion not to reconfirm what may be obvious, but rather, a possible more effective treatment regiment.
Not prying in any way, but depending upon many cancer types, you should find a well known and well respected Dr that specializes in the applicable cancer. In many instances, you build a team, that works together, often guided by the specialist. If your local oncologist opposes this, find someone else, they are not worthy of being on your team.
Also, if viable, and I know personalities vary for everyone, but a good support group, whether local, which can share local Dr experiences, or even a distant support group via a Zoom Meeting is often beneficial.
Typical statistics indicate that patients that utilize a specialist, and also belong to a good functional support group, plus have the means of a good caregiver, overall do better in regards to longevity, handling side effects, and finding a more positive perspective.
Regarding your caregiver or a supporter, almost always, but more importantly in the beginning of your journey, have them attend appointments to listen and take accurate notes. They can also ensure that the questions you have a written down to be asked at each appointment are presented and answered. The caregiver can note the answers, allowing you to be focused and listen closely. On average, after the initial Dr visit, each visit thereafter is 10 to 15 minutes max. A short time for you to convey your questions after the Dr has spoken. Therefore, between your written questions and having a caregiver at your side, DO NOT let the Dr blow you off and leave until your questions are answered so that you and the caregiver obtain understandable answers.
My words are certainly no cure, but some of my many life's lessons, learned and applied to help folks when needed.
Suffice to say, more than a few Doctors and I have had serious discussions and they were caught within their own wishy washy words. From then on, if that Dr was even seen again, they were beyond careful of how they correctly played their cards.
Again not prying, asking, or delving into any specifics as these can be not only trying times, but often personal times, at least in the early and initial diagnosis / treatments.
Sincerely, and I mean this, remain tough and in the fight, even though what was easy yesterday can be a challenge today.
For humor, you can watch reruns of old TV shows like Adam 12, Emergency, Perry Mason, Gunsmoke etc. They may help you “get away” for a moment until you fall asleep and truly step away from the pain and worry, even if only for a minute.
All the best and stay positive in your attitude, it does matter.
So I've been getting treatments for a month since this was discovered... ain't no fun at all! :gaah: :roflblack: They are being fairly aggressive about my issue; many Saline drips for fluid, along with blood transfusions, and Platelets with the Chemo. I'm not seeing a lot of progress, but some days are better than others... Not today - Mon. - felt like total crap when I went in but much better on the way out (after 6 six hours). I may try and take a short ride tomorrow. I'll let you know how it goes... Thanks again for all the support. :thumbup:
So folks I have recently been diagnosed with Cancer :banghead:.... It's stage #4, so prognosis isn't good .... My attitude about this " We all die sometime " .... this may be mine :dontknow: ....I've started my Chemo and so far things have gotten a little better..... Pain is not too bad but it's there 24/7 ..... Please don't think of this as a " Oh Boo Hoo whoa is me thing thread " .... just letting you know I'm slowing down & why ..... I feel my time on Spyderlovers has had it's ups and down's ..... but mostly UPS. .... I think LaMonsters changes has been for the better ( at least in my case :roflblack..... I've tried to assist in areas I have knowledge ( Yes especially TIRES :yikes
& will continue to do so...... So accept this thread for what it is .... just keeping folks in the Loop .....Mike :thumbup:
Mike, my friend, I'm so sad to hear this. I was thinking about you last month, that it was maybe getting time to go up your way again and do that ryde on Lincoln Gap Road that I missed last year. Hopefully you will be feeling better in time and if you are feeling capable enough, I'd like to come up and do that ryde with you. (Or anywhere else you'd like.)
You're a great guy to know and I hope to see you soon.
Been waiting to hear from you. They opened it at the beginning of May, and I did a few dozen rides. After the Cancer hit, I was laid low and have only recently begun taking some rides again. Sorry, but I won't be able to offer a lay-over... But I could probably take you there and follow at a sedate pace... :roflblack: :yes:
Ps: You did leave your cable under the bed. It's sitting on my desk right now. ... Mike :thumbup:
That's fine Mike, I can make hotel arrangements. I might arrange a trip with a couple of other Spyder ryder friends from here in CT. Need to wait for this extreme heat to break plus other personal stuff going on. I'll let you know well ahead of time when we're planning on coming up.