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Multiple Sclerosis SUCKS! But living life is awesome.

aeroshots

aeroshots

New member
MS SUCKS!!!!
My wife is full time in a wheelchair from MS. She says she wants to see the country while it is still ours to see and she is able. We have been traveling, camping, and off-roading in our Jeep for the last 5 years. She was once featured in Momentum magazine http://www.momentummagazineonline.com/crawl4thecure/

A 2015 Spyder RT Limited is being uncrated for us tomorrow:clap:. I am not sure how much longer I can keep up with her, she keeps me on my toes with adventure after adventure.:bowdown:

Well, let the new adventure begin.
 
ms

I to have MS so I understand what she is going through, mine is relapsing remiting MS (RRMS) since 1996, I have my good days and my bad days.
 
ekfraz said:
I to have MS so I understand what she is going through, mine is relapsing remiting MS (RRMS) since 1996, I have my good days and my bad days.
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Prayers for you my friend. You guys are so tough it always amazes me. Keep living life.:thumbup:
 
I am one of the motorcycle marshals for the MS150 from Houston to Austin.

Will keep y'all in our thoughts.


aeroshots, may you and yours enjoy those adventures.
 
Amazing..!!

congratulations to you both for living life to the fullest. You both are going to enjoy this new journey...:2thumbs:
 
I hope you both can visit & enjoy the beauty in every state (& province) before your brave wife feels the journeying is too much for her.

My young neighbour has it & it is painful for me to see the deterioration in her capabilities, but she somehow still manages to teach full time.
 
congrats on the new ride!!! :pray: may most of her days be good ones from this time forth. we know the spyder will help. it is strong medicine!!:roflblack::roflblack:
 
Spyder Named

spydaman60 said:
congrats on the new ride!!! :pray: may most of her days be good ones from this time forth. we know the spyder will help. it is strong medicine!!:roflblack::roflblack:
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"Mentalfloss II"

;) We had a sailboat named Mentalfloss, so this seemed appropriate.
 
My wife has Primary Progressive MS and we ride everywhere on our RT. We have a 622 trailer where we carry her mobility scooter. We found a light (58 pounds) scooter that I can get in and out of the trailer without to much trouble. This scooter allows her to be able to get around when we get to our destination. You can check it out at www.luggie-scooters.com
 
aeroshots said:
MS SUCKS!!!!
My wife is full time in a wheelchair from MS. She says she wants to see the country while it is still ours to see and she is able. We have been traveling, camping, and off-roading in our Jeep for the last 5 years. She was once featured in Momentum magazine http://www.momentummagazineonline.com/crawl4thecure/

A 2015 Spyder RT Limited is being uncrated for us tomorrow:clap:. I am not sure how much longer I can keep up with her, she keeps me on my toes with adventure after adventure.:bowdown:

Well, let the new adventure begin.
Click to expand...
What timing! Lot of MS Walks this coming month. I have Primary Progressive MS and finally had to sell my most recent bike, Victory Cross Country. After riding 2 wheels nearly 40 years, I now have a 14 RT-SE6 and love it. Still have my face in the wind and wife now comes everywhere with me. Not so much on two wheels! Actually have plans to leave Monday for Death Valley which will be tough as heat is not a lot of fun for people with MS. Anyhow, anyone in the Bay Area, we will be in Oakland April 18th, Walk MS. Would love to see some Spyder riders there!
 
Thank's for posting Aero.

You are going to like the 2015. Ride as much as you folks can, and enjoy. :yes::yes:
 
Nice to see the ms posts. My wife also has ms and loves to ride. I switched to the spyder last year so she could ride with me and she is enjoying it very much. Got a trailer for trips and looking forward to those. She has the progressive relapsing and rides on good days.
 
Amen brother! MS brought me to Can Am as well and my RT limited will be on order in a few weeks! Living every day like it's my last! #FUMS

aeroshots said:
MS SUCKS!!!!
My wife is full time in a wheelchair from MS. She says she wants to see the country while it is still ours to see and she is able. We have been traveling, camping, and off-roading in our Jeep for the last 5 years. She was once featured in Momentum magazine http://www.momentummagazineonline.com/crawl4thecure/

A 2015 Spyder RT Limited is being uncrated for us tomorrow:clap:. I am not sure how much longer I can keep up with her, she keeps me on my toes with adventure after adventure.:bowdown:

Well, let the new adventure begin.
Click to expand...
 
Been riding since I was 19 and I am now in the process of parting with my '11 Kingpin 8ball which has been the love of my motorcycle life. I am not happy to see others with MS (I have RRMS) but I am very happy to see others with the same spirit! Never give up! Never surrender! I always said, MS should have killed me when it had the chance because all it did was piss me off! :2thumbs:


martiniman said:
What timing! Lot of MS Walks this coming month. I have Primary Progressive MS and finally had to sell my most recent bike, Victory Cross Country. After riding 2 wheels nearly 40 years, I now have a 14 RT-SE6 and love it. Still have my face in the wind and wife now comes everywhere with me. Not so much on two wheels! Actually have plans to leave Monday for Death Valley which will be tough as heat is not a lot of fun for people with MS. Anyhow, anyone in the Bay Area, we will be in Oakland April 18th, Walk MS. Would love to see some Spyder riders there!
Click to expand...
 
Yes, MS sucks for sure. But I'm sure you both know that most "healthy" folks are not having half the fun you two are having - or enjoying life as much. Kari sounds like one great lady. :2thumbs: Not sure I could keep up with her.

Thanks for posting the link to the article. Enjoyed reading it.
 
Wow! So many lives touched by such an incredibly horrible disease. My husband got hooked on this web site and after checking it out I can see why. My name is Diane, four years ago I was diagnosed with MS.:shocked: The first thing I said to Rob was....I'd do anything to ride on the back of a bike again and feel the sun on my face and the wind in my hair. Well, don't you know that amazing man went right out and got his motorcycle license?:ohyea: We started renting bikes and the very first one was a Spyder RT! Loved it from the moment I sat down. It offered me the stability I need because my body is no longer strong. In four short year I became worse and now have Secondary Progressive MS. Soooo we sold the house and bought a beautiful 2014 Spyder RT in black currant. She is My Black Rose. When we ride....I forget everything, the disease, the damage to my body, my reduced eyesight, the fact that there are no meds for me to stop this insidious disease :banghead: I have been given the beauty of forewarning. Rob and I live for the fun of today, and all the today's to come. When I am on the back of My Black Rose I laugh like the girl I was and not the woman I have become. Keep riding, keep hopeful, the miracle may just be around the corner. Until then the best medicine in the world is riding on the back of my Syder with my arms around my husband. Don't ever give in to this disease....it can't win over our love of living.
 
ROB K said:
Wow! So many lives touched by such an incredibly horrible disease. My husband got hooked on this web site and after checking it out I can see why. My name is Diane, four years ago I was diagnosed with MS.:shocked: The first thing I said to Rob was....I'd do anything to ride on the back of a bike again and feel the sun on my face and the wind in my hair. Well, don't you know that amazing man went right out and got his motorcycle license?:ohyea: We started renting bikes and the very first one was a Spyder RT! Loved it from the moment I sat down. It offered me the stability I need because my body is no longer strong. In four short year I became worse and now have Secondary Progressive MS. Soooo we sold the house and bought a beautiful 2014 Spyder RT in black currant. She is My Black Rose. When we ride....I forget everything, the disease, the damage to my body, my reduced eyesight, the fact that there are no meds for me to stop this insidious disease :banghead: I have been given the beauty of forewarning. Rob and I live for the fun of today, and all the today's to come. When I am on the back of My Black Rose I laugh like the girl I was and not the woman I have become. Keep riding, keep hopeful, the miracle may just be around the corner. Until then the best medicine in the world is riding on the back of my Syder with my arms around my husband. Don't ever give in to this disease....it can't win over our love of living.
Click to expand...

Amen, Diane, AMEN!:clap:
 
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